Spanish researchers launch massive DM1 registry to unlock disease secrets
NCT ID NCT07385443
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study aims to create a national registry for people with Myotonic Dystrophy Type 1 (DM1) in Spain. Researchers will collect clinical data, genetic information, and patient reports from up to 3,000 participants. The goal is to better understand the disease and identify people who may be eligible for future clinical trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could help researchers better understand DM1 and speed up recruitment for future clinical trials.
- What could go wrong
- This is an observational registry, not a treatment trial. It will not directly improve symptoms or provide a cure.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Andalusia, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Basque Country, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Canary Islands, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Cantabria, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Castilla-La Macha, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Catalonia, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Madrid, Spain
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Valencia, Spain
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Other studies related to the condition(s) this trial covers.
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