Spanish researchers launch massive DM1 registry to unlock disease secrets
NCT ID NCT07385443
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study aims to create a national registry for people with Myotonic Dystrophy Type 1 (DM1) in Spain. Researchers will collect clinical data, genetic information, and patient reports from up to 3,000 participants. The goal is to better understand the disease and identify people who may be eligible for future clinical trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help researchers better understand DM1 and speed up recruitment for future clinical trials.
What could go wrong
This is an observational registry, not a treatment trial. It will not directly improve symptoms or provide a cure.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Andalusia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Basque Country, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Canary Islands, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Cantabria, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Castilla-La Macha, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Catalonia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Madrid, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Hospitals within the DM1 network
RECRUITINGMultiple Locations, Valencia, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact