Spain launches major effort to map a rare muscle disease
Knowledge-focused
Recruiting now
This study is creating a national patient registry in Spain for people with Myotonic Dystrophy Type 1 (DM1), a rare genetic muscle disease. It aims to collect detailed health information from up to 3,000 participants to better understand how the disease varies and progresses over…
Sponsor: Fundació Institut Germans Trias i Pujol • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:40 UTC