FSHD patients unite: new registry aims to accelerate research and care
NCT ID NCT07409142
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information through surveys to help researchers better understand the disease and develop improved treatments. The goal is to connect patients with resources and research opportunities while advancing knowledge of FSHD.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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FSHD Society
RECRUITINGRandolph, Massachusetts, 02368, United States
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Other studies related to the condition(s) this trial covers.
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