New FSHD registry aims to accelerate research through patient data
Knowledge-focused
Recruiting now
This study is building a registry for people with facioscapulohumeral muscular dystrophy (FSHD). Participants share their health experiences and data through surveys, which researchers use to better understand the disease and work toward improved treatments. Anyone in the U.S. wi…
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated May 17, 2026 09:09 UTC