FSHD patients unite: new registry aims to accelerate research and care
Knowledge-focused
Recruiting now
This study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information through surveys to help researchers better understand the disease and develop impr…
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated Jun 27, 2026 09:07 UTC