New hope for FSHD: Long-Term drug safety trial underway
NCT ID NCT06547216
First seen May 15, 2026 · Last updated May 15, 2026
Summary
This study looks at the long-term safety and effectiveness of a drug called AOC 1020 for people with FSHD, a genetic disease that causes muscle weakness. About 84 adults who completed a previous study will receive the drug through an IV. The main goal is to check for side effects over an extended period.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for FSHD2 are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Duke University
Durham, North Carolina, 27708, United States
-
Kansas University Medical Center
Kansas City, Kansas, 66205, United States
-
Ohio State University
Columbus, Ohio, 43221, United States
-
Rare Disease Research
Atlanta, Georgia, 30329, United States
-
Stanford University
Palo Alto, California, 94304, United States
-
University College London
London, WIT 7HA, United Kingdom
-
University of California Los Angeles
Los Angeles, California, 90095, United States
-
University of California San Diego
San Diego, California, 92093, United States
-
University of Colorado
Denver, Colorado, 80045, United States
-
University of Florida
Gainesville, Florida, 32608, United States
-
University of Ottawa
Ottawa, Ontario, K1Y 4E9, Canada
-
University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
-
University of Rochester Medical Center
Rochester, New York, 14642, United States
-
University of Sheffield
Sheffield, S10 2TN, United Kingdom
-
University of Texas Southwestern
Dallas, Texas, 75390, United States
-
University of Washington
Seattle, Washington, 98104, United States
-
Virginia Commonwealth University
Richmond, Virginia, 23298, United States
Conditions
Explore the condition pages connected to this study.