FSHD2
Clinical trials for FSHD2 explained in plain language.
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Breakthrough drug trial offers hope for rare muscle disease
Disease control Recruiting nowThis study is testing an experimental drug called AOC 1020 for people with facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. About 200 participants will receive either the drug or a placebo via IV infusion every six weeks …
Matched conditions: FSHD2
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated Mar 30, 2026 14:32 UTC
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Patients unite to power FSHD research through new national registry
Knowledge-focused Recruiting nowBetterLife FSHD is a patient-driven registry and online platform for people with Facioscapulohumeral Muscular Dystrophy (FSHD). It aims to collect health and experience data from up to 5,000 participants through regular surveys to help researchers better understand the disease. T…
Matched conditions: FSHD2
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated Mar 13, 2026 15:06 UTC
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New ultrasound scan could spot breathing problems earlier in muscle disease
Knowledge-focused Recruiting nowThis study aims to see if a simple ultrasound scan can be a better tool for tracking breathing problems in adults with Facioscapulohumeral Muscular Dystrophy (FSHD). Researchers will follow 34 patients for one year, comparing ultrasound images of the main breathing muscle (the di…
Matched conditions: FSHD2
Phase: NA • Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS • Aim: Knowledge-focused
Last updated Mar 02, 2026 15:23 UTC