FSHD2
Clinical trials for FSHD2 explained in plain language.
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New drug trial hopes to slow muscle loss in FSHD
Disease control Recruiting nowThis study tests an experimental drug called AOC 1020 in 200 adults with facioscapulohumeral muscular dystrophy (FSHD), a genetic disease that causes progressive muscle weakness. Participants receive either the drug or a placebo by IV every few weeks. The goal is to see if the dr…
Matched conditions: FSHD2
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated May 11, 2026 20:46 UTC
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New FSHD registry aims to accelerate research through patient data
Knowledge-focused Recruiting nowThis study is building a registry for people with facioscapulohumeral muscular dystrophy (FSHD). Participants share their health experiences and data through surveys, which researchers use to better understand the disease and work toward improved treatments. Anyone in the U.S. wi…
Matched conditions: FSHD2
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated May 17, 2026 08:53 UTC
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Sound waves could reveal hidden breathing problems in muscle disease
Knowledge-focused Recruiting nowThis study follows 34 adults with FSHD, a muscle disease that can weaken breathing, for one year. Researchers will use ultrasound to measure diaphragm movement and thickness, comparing it to standard breathing tests. The goal is to see if ultrasound can detect changes in respirat…
Matched conditions: FSHD2
Phase: NA • Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS • Aim: Knowledge-focused
Last updated May 17, 2026 08:45 UTC