Heart data hunt: no treatment, but paving way for future cures

NCT ID NCT07344480

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks back at medical records of 100 children with a genetic condition called RASopathy that causes severe heart thickening and heart failure. Researchers want to collect detailed information on how the disease progressed in the past. This will help design future studies of new targeted drugs, without giving any treatment itself.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

heart failure hypertrophic cardiomyopathy RASopathy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • TUM Klinikum Deutsches Herzzentrum München

    RECRUITING

    München, 80636, Germany