New online program aims to ease anxiety for parents of kids with rare diseases
NCT ID NCT06548022
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study tested a 5-week online group program called Rare Group Problem Management Plus (PM+) for parents of children with rare diseases. The program teaches stress management and problem-solving skills to help reduce anxiety, depression, and distress. Eight parents participated, and the study measured how many stayed in the program to see if it was acceptable and helpful.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Rare Group Problem Management Plus (Group PM+)
What this could lead to
If it works, this could offer a practical, online way to reduce stress and anxiety for parents caring for children with rare diseases.
What could go wrong
This is a very small, completed study with only 8 participants and no control group, so results may not apply to all caregivers. The program is behavioral, not a medical treatment.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Children's National Hospital
Washington D.C., District of Columbia, 20010, United States