Massive U.S. registry aims to unlock secrets of pulmonary hypertension care

NCT ID NCT04071327

Recruiting now Knowledge-focused Sponsor: Pulmonary Hypertension Association, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a national registry that collects information from 3,000 people with pulmonary hypertension (PH) treated at specialized centers across the U.S. Researchers will track how patients are diagnosed, treated, and how they do over time. The goal is to see if care follows recommended guidelines and identify factors that lead to better or worse outcomes.

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Conditions

The condition(s) this trial relates to.

chronic thromboembolic pulmonary hypertension pulmonary arterial hypertension pulmonary hypertension pulmonary hypertension owing to lung disease and/or hypoxia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSION PULMONARY ARTERIAL HYPERTENSION PULMONARY HYPERTENSION

Contacts and locations

Locations

Allegheny General Hospital
RECRUITING

Pittsburgh, Pennsylvania, 15212, United States
AnMed Health
RECRUITING

Anderson, South Carolina, 29621, United States
Arizona Pulmonary Specialists, Ltd.
RECRUITING

Phoenix, Arizona, 85012, United States
Aurora St. Luke's Medical Center
RECRUITING

Milwaukee, Wisconsin, 53215, United States
Baylor Scott & White
RECRUITING

Plano, Texas, 75093, United States
Children's Hospital Colorado
RECRUITING

Aurora, Colorado, 80045, United States
Cincinnati Children's Hospital
RECRUITING

Cincinnati, Ohio, 45229, United States
Columbia University Medical Center/NewYork-Presbyterian Hospital
RECRUITING

New York, New York, 10032, United States
Cottage Health System - Santa Barbara Pulmonary Associates
RECRUITING

Santa Barbara, California, 93105, United States
Duke University Medical Center
RECRUITING

Durham, North Carolina, 27710, United States
Froedtert & Medical College of Wisconsin
RECRUITING

Milwaukee, Wisconsin, 53226, United States
Ft. Sanders Regional Medical Center
RECRUITING

Knoxville, Tennessee, 37916, United States
Henry Ford Hospital
RECRUITING

Detroit, Michigan, 48202, United States
Indiana University Health
NOT_YET_RECRUITING

Indianapolis, Indiana, 46202, United States
Inova Fairfax Hospital
RECRUITING

Falls Church, Virginia, 22042, United States
Johns Hopkins University
RECRUITING

Baltimore, Maryland, 21287, United States
KU Medical Center
RECRUITING

Kansas City, Kansas, 66160, United States
Kentuckiana Pulmonary Associates
RECRUITING

Louisville, Kentucky, 40202, United States
LSU Healthcare Network Clinic
RECRUITING

New Orleans, Louisiana, 70115, United States
Mayo Clinic
RECRUITING

Rochester, Minnesota, 55905, United States
Mayo Clinic Florida
RECRUITING

Jacksonville, Florida, 32224, United States
Northside Hospital
RECRUITING

Atlanta, Georgia, 30342, United States
Ochsner Medical Center
RECRUITING

Jefferson, Louisiana, 70121, United States
Rhode Island Hospital
RECRUITING

Providence, Rhode Island, 02903, United States
Seattle Children's Hospital
RECRUITING

Seattle, Washington, 98105, United States
Sentara Heart Hospital
RECRUITING

Norfolk, Virginia, 23507, United States
Stanford University
RECRUITING

Stanford, California, 94305, United States
Texas Children's Hospital
RECRUITING

Houston, Texas, 77030, United States
The Oregon Clinic
RECRUITING

Portland, Oregon, 97225, United States
UC Davis Health
RECRUITING

Sacramento, California, 95816, United States
UC Health
RECRUITING

Cincinnati, Ohio, 45267, United States
UC Health - Anschutz Medical Campus
RECRUITING

Aurora, Colorado, 80045, United States
UCSF Benioff Children's Hospital
RECRUITING

San Francisco, California, 94158, United States
UCSF Medical Center
RECRUITING

San Francisco, California, 94143, United States
UNC Chapel Hill
RECRUITING

Chapel Hill, North Carolina, 27517, United States
UT Southwestern Medical Center
RECRUITING

Dallas, Texas, 75390, United States
University of Connecticut Health
RECRUITING

Farmington, Connecticut, 06030, United States
University of Iowa Hospitals & Clinic
RECRUITING

Iowa City, Iowa, 52242, United States
University of MD Medical Group, PA
RECRUITING

Baltimore, Maryland, 21201, United States
University of Minnesota Health
RECRUITING

Minneapolis, Minnesota, 55455, United States
University of Pennsylvania
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
University of Pittsburgh Medical Center
RECRUITING

Pittsburgh, Pennsylvania, 15213, United States
University of Rochester Medical Center
RECRUITING

Rochester, New York, 14642-0001, United States
University of Utah Health
RECRUITING

Salt Lake City, Utah, 84132, United States
University of Virginia
RECRUITING

Charlottesville, Virginia, 22908, United States
University of Washington
RECRUITING

Seattle, Washington, 98195, United States
University of Wisconsin Hospital and Clinics
RECRUITING

Madison, Wisconsin, 53792, United States
VCU Medical Center
RECRUITING

Richmond, Virginia, 23298, United States
Vanderbilt Children's Hospital
RECRUITING

Nashville, Tennessee, 37232, United States
Vanderbilt University Medical Center
RECRUITING

Nashville, Tennessee, 37232, United States
Washington University in St. Louis
RECRUITING

St Louis, Missouri, 63110, United States
Weill Cornell Medical Center
RECRUITING

New York, New York, 10021, United States

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