Dementia care: the hidden struggles of extended family caregivers revealed

NCT ID NCT04863859

Completed Knowledge-focused Sponsor: Karen Roberto Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This completed study looked at the experiences of 275 extended family members (like grandchildren, siblings, and nieces/nephews) who care for a person with dementia. Researchers interviewed caregivers about their daily tasks, stress, and use of support services. The goal is to use these findings to improve services and reduce caregiver burden.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could help improve services and support for dementia caregivers, reducing their stress and improving quality of life for both caregivers and patients.
What could go wrong: This is an observational study, not a treatment trial. It cannot directly cure or treat dementia. Results may not apply to all caregivers or regions.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Alzheimer disease dementia neurodegenerative disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

DEMENTIA DEMENTIA ALZHEIMERS DEMENTIA OF ALZHEIMER TYPE DEMENTIA SEVERE NEURO-DEGENERATIVE DISEASE

Contacts and locations

Locations

Virginia Polytechnic Institute and State University

Blacksburg, Virginia, 24061, United States

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