Massive ALS data study aims to unlock secrets of the disease
NCT ID NCT03489278
First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 27 times
Summary
This study collects information from the medical records of 1,200 people with ALS and related conditions. The goal is to learn more about these diseases and improve future research. Participants must receive care at a clinic that uses Epic electronic health records and speak English or Spanish.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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California Pacific Medical Center
RECRUITINGSan Francisco, California, 94115, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Columbia University
ACTIVE_NOT_RECRUITINGNew York, New York, 10032, United States
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Duke University
RECRUITINGDurham, North Carolina, 27708, United States
Contact Email: •••••@•••••
Contact
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Hennepin County Medical Center
RECRUITINGMinneapolis, Minnesota, 55404, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Providence Health & Services
RECRUITINGPortland, Oregon, 97213, United States
Contact Email: •••••@•••••
Contact
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Stanford University
RECRUITINGPalo Alto, California, 94304, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California, Irvine
RECRUITINGIrvine, California, 92868, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66205, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Miami
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Texas San Antonio Health Science Center
RECRUITINGSan Antonio, Texas, 78229, United States
Contact
Contact Email: •••••@•••••
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Wake Forest University
RECRUITINGWinston-Salem, North Carolina, 27157, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.