Massive data dive aims to unlock ALS mysteries
NCT ID NCT03489278
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study gathers information from the medical records of 1,200 people with ALS and similar conditions. Researchers will use this data to better understand the disease and improve future studies. No experimental treatments are given—the goal is simply to learn from real-world patient care.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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California Pacific Medical Center
RECRUITINGSan Francisco, California, 94115, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Columbia University
ACTIVE_NOT_RECRUITINGNew York, New York, 10032, United States
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Duke University
RECRUITINGDurham, North Carolina, 27708, United States
Contact Email: •••••@•••••
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Hennepin County Medical Center
RECRUITINGMinneapolis, Minnesota, 55404, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Providence Health & Services
RECRUITINGPortland, Oregon, 97213, United States
Contact Email: •••••@•••••
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Stanford University
RECRUITINGPalo Alto, California, 94304, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California, Irvine
RECRUITINGIrvine, California, 92868, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Kansas Medical Center
RECRUITINGKansas City, Kansas, 66205, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Miami
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Texas San Antonio Health Science Center
RECRUITINGSan Antonio, Texas, 78229, United States
Contact
Contact Email: •••••@•••••
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Wake Forest University
RECRUITINGWinston-Salem, North Carolina, 27157, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••