Massive data dive aims to unlock ALS mysteries

NCT ID NCT03489278

Recruiting now Knowledge-focused Sponsor: University of Miami Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study gathers information from the medical records of 1,200 people with ALS and similar conditions. Researchers will use this data to better understand the disease and improve future studies. No experimental treatments are given—the goal is simply to learn from real-world patient care.

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis frontotemporal dementia frontotemporal dementia with motor neuron disease lateral sclerosis motor neuron disorder progressive muscular atrophy spinal muscular atrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ALS-FRONTOTEMPORAL DEMENTIA AMYOTROPHIC LATERAL SCLEROSIS PRIMARY LATERAL SCLEROSIS PROGRESSIVE MUSCULAR ATROPHY

Contacts and locations

Locations

California Pacific Medical Center
RECRUITING

San Francisco, California, 94115, United States
Columbia University
ACTIVE_NOT_RECRUITING

New York, New York, 10032, United States
Duke University
RECRUITING

Durham, North Carolina, 27708, United States
Hennepin County Medical Center
RECRUITING

Minneapolis, Minnesota, 55404, United States
Providence Health & Services
RECRUITING

Portland, Oregon, 97213, United States
Stanford University
RECRUITING

Palo Alto, California, 94304, United States
University of California, Irvine
RECRUITING

Irvine, California, 92868, United States
University of Kansas Medical Center
RECRUITING

Kansas City, Kansas, 66205, United States
University of Miami
RECRUITING

Miami, Florida, 33136, United States
University of Texas San Antonio Health Science Center
RECRUITING

San Antonio, Texas, 78229, United States
Wake Forest University
RECRUITING

Winston-Salem, North Carolina, 27157, United States

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