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Massive ALS data bank launches to speed up research

NCT ID NCT05204017

Recruiting now Knowledge-focused Sponsor: University of Alberta Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

CAPTURE ALS is a long-term study that collects health data and biological samples from 150 people with ALS and related conditions. The goal is to create a shared resource for researchers worldwide to better understand the disease and develop new treatments. No experimental drugs are given; participants undergo regular assessments like breathing tests, speech recordings, and brain scans.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this platform could provide researchers worldwide with the data needed to develop better treatments or even a cure for ALS.
What could go wrong
This is an observational study, not a treatment trial. It does not test any new drug or therapy, so there is no direct benefit to participants. Results depend on future research using the collected data.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis Disease Progression frontotemporal dementia lateral sclerosis motor neuron disorder progressive muscular atrophy spinal muscular atrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AMYOTROPHIC LATERAL SCLEROSIS FRONTOTEMPORAL DEGENERATION PRIMARY LATERAL SCLEROSIS PROGRESSIVE MUSCULAR ATROPHY

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • CHU de Quebec -Universite de Laval

    RECRUITING

    Québec, Quebec, G1J 1Z, Canada

  • McGill University / Montreal Neurological Institute and Hospital

    RECRUITING

    Montreal, Quebec, H4A2H6, Canada

  • University of Alberta

    RECRUITING

    Edmonton, Alberta, T6G 2B7, Canada

  • University of Toronto / Sunnybrook Health Sciences Centre

    RECRUITING

    Toronto, Ontario, M4N 3M5, Canada

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