Global registry aims to unlock clues for heart transplant success in adults born with heart defects
NCT ID NCT04848844
First seen Jul 01, 2026 · Last updated Jul 01, 2026
Summary
This registry tracks 2,000 adults with congenital heart disease who are on the waiting list for a heart or heart-lung transplant. The goal is to understand why some patients get worse or die while waiting, while others improve enough to be removed from the list. By collecting data from around the world, researchers hope to identify factors that could lead to better outcomes for this growing patient population.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could identify key factors that improve survival and reduce complications for adults with congenital heart disease awaiting transplantation.
What could go wrong
As an observational registry, it cannot prove cause and effect. Results may not apply to all patient groups or lead to immediate changes in care.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University Heart and Vascular Center Hamburg
RECRUITINGHamburg, Free and Hanseatic City of Hamburg, 20246, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••