Global registry aims to unlock clues for heart transplant success in adults born with heart defects

NCT ID NCT04848844

Recruiting now Knowledge-focused Sponsor: Universitätsklinikum Hamburg-Eppendorf Source: ClinicalTrials.gov ↗

First seen Jul 01, 2026 · Last updated Jul 02, 2026 · Updated 1 time

Summary

This registry tracks 2,000 adults with congenital heart disease who are on the waiting list for a heart or heart-lung transplant. The goal is to understand why some patients get worse or die while waiting, while others improve enough to be removed from the list. By collecting data from around the world, researchers hope to identify factors that could lead to better outcomes for this growing patient population.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could identify key factors that improve survival and reduce complications for adults with congenital heart disease awaiting transplantation.
What could go wrong: As an observational registry, it cannot prove cause and effect. Results may not apply to all patient groups or lead to immediate changes in care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for ARRHYTHMOGENIC RIGHT VENTRICULAR CARDIOMYOPATHY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

Arrhythmias, Cardiac arrhythmogenic right ventricular cardiomyopathy cardiac rhythm disease cardiac ventricle disorder congenital heart disease heart failure hypertrophic cardiomyopathy non-compaction cardiomyopathy Ventricular Dysfunction

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ARRYTHMIA CONGENITAL HEART DISEASE HEART FAILURE TRANSPLANT; COMPLICATION, FAILURE VENTRICULAR DYSFUNCTION

Contacts and locations

Locations

University Heart and Vascular Center Hamburg
RECRUITING

Hamburg, Free and Hanseatic City of Hamburg, 20246, Germany

More trials for these conditions

Other studies related to the condition(s) this trial covers.