Biggest ALS gene study aims to unlock disease secrets
NCT ID NCT02327845
First seen Jun 18, 2026 · Last updated Jun 18, 2026
Summary
This study looks at people with ALS and similar diseases like frontotemporal dementia and hereditary spastic paraplegia. Researchers want to understand how genes affect the disease and find biological markers (biomarkers) to help develop future treatments. About 708 participants, including family members, will provide data over time.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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California Pacific Medical Center (CPMC)
San Francisco, California, 94115, United States
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Cleveland Clinic
Cleveland, Ohio, 44195, United States
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Eberhard Karls University of Tübingen
Tübingen, Germany
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Kansas University Medical Center (KUMC)
Kansas City, Kansas, 66160, United States
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Stanford University
Palo Alto, California, 94304, United States
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Twin Cities ALS Research Consortium
Minneapolis, Minnesota, 55415, United States
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University of California San Diego (UCSD)
San Diego, California, 92093, United States
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University of Cape Town
Cape Town, South Africa
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Miami
Miami, Florida, 33136, United States
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University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
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University of Texas Health Science Center San Antonio (UTHSCSA)
San Antonio, Texas, 78229, United States
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University of Texas Southwestern (UTSW)
Dallas, Texas, 75390, United States
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University of Virginia (UVA)
Charlottesville, Virginia, 22908, United States
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Wake Forest University
Winston-Salem, North Carolina, 27157, United States
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.