Alport syndrome registry laid groundwork for future treatments
NCT ID NCT00481130
First seen Jan 05, 2026 · Last updated May 14, 2026 · Updated 21 times
Summary
This study created a registry of 655 people and families with Alport syndrome to collect health information over time. The goal was to better understand the disease and provide a foundation for future treatment studies. No experimental treatments were given; it was purely an observational data-gathering effort.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
Conditions
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