ALPORT SYNDROME
Clinical trials for ALPORT SYNDROME explained in plain language.
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New hope for rare kidney disease: drug targets protein to slow damage
Disease control Recruiting nowThis study tests an experimental drug called BAY 3401016 in 60 adults aged 18 to 45 with Alport syndrome, a rare genetic condition that leads to kidney failure. The drug blocks a protein thought to cause kidney damage, aiming to reduce protein in the urine and slow the loss of ki…
Matched conditions: ALPORT SYNDROME
Phase: PHASE2 • Sponsor: Bayer • Aim: Disease control
Last updated May 17, 2026 05:35 UTC
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New hope for kids with rare kidney diseases: sparsentan trial aims to cut protein leakage
Disease control Recruiting nowThis study tests an oral drug called sparsentan in 67 children with certain kidney diseases that cause protein in the urine. The goal is to see if the drug safely reduces protein leakage and helps control the disease over about two years. Participants take the drug once daily, an…
Matched conditions: ALPORT SYNDROME
Phase: PHASE2 • Sponsor: Travere Therapeutics, Inc. • Aim: Disease control
Last updated May 17, 2026 05:28 UTC
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Join the alport registry: your story could lead to a cure
Knowledge-focused Recruiting nowThis study is a patient registry for people living with Alport syndrome in the US. Participants share their health history through a secure online portal to help researchers better understand the disease and design future clinical trials. No treatments or medications are given. A…
Matched conditions: ALPORT SYNDROME
Sponsor: Alport Syndrome Foundation • Aim: Knowledge-focused
Last updated May 17, 2026 05:32 UTC
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Personalized trial matching could revolutionize kidney care
Knowledge-focused Recruiting nowThis study helps people with certain kidney diseases (like nephrotic syndrome and FSGS) find clinical trials that might be a good fit for their specific condition. Researchers use advanced molecular testing to match each person's unique disease profile to targeted therapies being…
Matched conditions: ALPORT SYNDROME
Phase: NA • Sponsor: University of Michigan • Aim: Knowledge-focused
Last updated May 17, 2026 05:08 UTC
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Major study tracks rare kidney disease to pave way for new therapies
Knowledge-focused Recruiting nowThis study follows 700 people with Alport syndrome, a rare inherited disease that can cause kidney failure, hearing loss, and eye problems. Researchers are collecting health data over time to understand how the disease progresses and to find early warning signs of kidney decline.…
Matched conditions: ALPORT SYNDROME
Sponsor: Institut National de la Santé Et de la Recherche Médicale, France • Aim: Knowledge-focused
Last updated May 15, 2026 11:57 UTC