Major study tracks rare kidney disease to pave way for new therapies
NCT ID NCT05927467
First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 35 times
Summary
This study follows 700 people with Alport syndrome, a rare inherited disease that can cause kidney failure, hearing loss, and eye problems. Researchers are collecting health data over time to understand how the disease progresses and to find early warning signs of kidney decline. The goal is to prepare for future clinical trials of new treatments, including gene and stem cell therapies.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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RaDiCo Eurbio-Alport
RECRUITINGParis, Île-de-France Region, 75012, France
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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