CAREGIVER BURDEN

This study tests a new website tool, WeCareToFeedDysphagia, designed to reduce stress and burden for people caring for older adults with Alzheimer's or related dementias who also have trouble swallowing. About 802 caregivers will be split into two groups: one gets access to the t…

This study tests an 8-week online program called SAGE LEAF that teaches positive emotion skills to family caregivers of people with dementia. The goal is to see if it can reduce caregiver burden, loneliness, and depression while boosting positive feelings and confidence. About 53…

This study looks at whether a remote, partner-based strength training program is practical and helpful for Hispanic prostate cancer survivors and their unpaid caregivers. About 58 pairs will take part in 3 months of supervised group exercise classes via video, with a 3-month foll…

This study tests a 6-week online program called Learning Skills Together (LST) for family caregivers of people with Alzheimer's or related dementias. The program teaches practical caregiving skills to help caregivers feel more confident and less depressed. About 216 caregivers wi…

This study looks at how to best support parents and caregivers who take care of a child with a tracheostomy at home. About 480 caregivers will be randomly assigned to receive either a standard discharge program or that program plus extra support. Researchers will measure caregive…

This study tests whether adding a caregiver training program to a visual mapping assistive technology (MapHabit) improves daily life for people with Alzheimer's or dementia and reduces stress for their caregivers. Fifty patient-caregiver pairs will use either the technology alone…

This study compares a home-based, tailored sleep therapy (CBT-I) with a web-based version to help caregivers of children with autism who have insomnia. About 80 caregivers will participate to see which approach is more acceptable and feasible. The goal is to improve sleep and red…

This study aimed to understand how common swallowing difficulties are in older adults after an ICU stay and how these problems affect recovery and quality of life. It planned to observe participants over time without providing any treatment. The study was withdrawn before enrolli…

This study looks at what daily factors help or hurt the mental health of Hispanic and Latino people caring for a relative with dementia. About 300 caregivers will answer surveys online for three weeks, then again at six and twelve months. The goal is to learn how stress, culture,…

This study tests an online Emergency Preparedness Toolkit for caregivers of people with dementia. The toolkit helps caregivers plan for their own unexpected health events by identifying and training a standby caregiver. About 68 caregivers aged 55 and older who live with their pa…

This study tests a program called PIC-TRFS to help older adults (age 50+) recover at home after a stay in the intensive care unit (ICU). The program includes health management, rehab, social support, and care coordination via telehealth. Researchers want to see if it improves qua…