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Virtual buddy system eases caregiver burden in MND

NCT ID NCT04695210

Symptom relief Sponsor: King's College London Source: ClinicalTrials.gov ↗

What the study statuses mean

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Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a 12-week online peer support programme for family caregivers of people with motor neurone disease who are becoming dependent on breathing or feeding technology. The programme included private messaging, weekly chats, a discussion forum, and resources. Researchers measured changes in anxiety, depression, and caregiver burden in 149 participants to see if this low-cost support could improve well-being.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
virtual peer-to-peer support programme
What this could lead to
If it works, this could provide a low-cost, flexible way to improve mental health and reduce burden for family caregivers of people with motor neurone disease.
What could go wrong
This is a relatively small completed trial (149 participants) testing a behavioural intervention, so results may not apply to all caregivers. The effect on distress may be modest or not sustained long-term.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

149 people

The number who actually took part.

Started

Jun 2022

Finished

Mar 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 to 100 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. age ≥ 18 years; 2. family/informal caregiver of an individual with MND living at home who is referred for consideration or receiving any of the following i.e., entering King's clinical staging Stage 4A: nutritional support; or Stage 4B: respiratory support \[51\]: 1. assisted ventilation 2. cough assist 3. gastroscopy and enteral feeding 3. able to speak/read English; 4. has access to a computer, tablet, or smartphone and the internet (we have the ability to provide loan 4G enabled tablets if required); and 5. consents to participation Exclusion Criteria: 1\. Actively receiving psychiatric/psychologist care identified through self-report.

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Conditions

The condition(s) this trial relates to.

amyotrophic lateral sclerosis motor neuron disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Amyotrophic lateral sclerosis Motor neuron disease

Contacts and locations

Locations

  • Airedale NHS Foundation Trust

    Bradford, BD20 6TD, United Kingdom

  • Bedfordshire Hospitals NHS Foundation Trust

    Bedford, MK42 9DJ, United Kingdom

  • Compton Care

    Wolverhampton, United Kingdom

  • Coventry Community Specialist Palliative Care Team

    Coventry, CV1 4NZ, United Kingdom

  • Guy's and St Thomas' NHS Foundation Trust

    London, SE1 9RT, United Kingdom

  • Hounslow and Richmond Community Healthcare

    Teddington, TW11 8HU, United Kingdom

  • Kingston Hospital NHS Foundation

    Kingston upon Thames, KT2 7QB, United Kingdom

  • Lancashire Teaching Hospitals NHS Foundation Trust

    Many Locations, United Kingdom

  • Marie Curie Hospice

    Many Locations, United Kingdom

  • Medway Community Healthcare

    Gillingham, ME8 0PZ, United Kingdom

  • Ninewells Hospital

    Dundee, DD1 9SY, United Kingdom

  • Nottinghamshire Healthcare NHS Foundation Trust

    Many Locations, United Kingdom

  • Phyllis Tuckwell Hospice

    Farnham, GU9 8BL, United Kingdom

  • Pilgrims Hospice

    Canterbury, United Kingdom

  • Royal Devon University Healthcare NHS Foundation Trust

    Exeter, EX2 5DW, United Kingdom

  • Royal Stoke University Hospital/University Hospitals North

    Multiple Locations, United Kingdom

  • Severn Hospice

    Shrewsbury, SY3 8HS, United Kingdom

  • Sheffield Teaching Hospitals NHS Foundation Trust

    Sheffield, S10 2JF, United Kingdom

  • St Margaret's Hospice

    Taunton, TA1 5HA, United Kingdom

  • Swansea Bay University Health Board

    Many Locations, United Kingdom

  • The Leicestershire & Rutland Organisation for the Relief of Suffering - LOROS

    Leicester, LE3 9QE, United Kingdom

  • The Walton Centre NHS Foundation Trust

    Liverpool, L9 7LJ, United Kingdom

  • University Hospitals Coventry and Warwickshire NHS Trust

    Coventry, CV2 2DX, United Kingdom

  • University Hospitals Plymouth NHS trust

    Plymouth, PL6 8DH, United Kingdom

  • University Hospitals Sussex NHS Foundation Trust

    Brighton, BN2 1DH, United Kingdom

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Other studies related to the condition(s) this trial covers.