Massive data hunt aims to crack rare castleman disease mysteries
NCT ID NCT02817997
First seen Nov 04, 2025 · Last updated May 20, 2026 · Updated 23 times
Summary
This study is a worldwide registry that collects medical information from people with Castleman disease, a rare disorder affecting lymph nodes. Researchers will analyze symptoms, lab results, treatments, and survival to better understand the disease and identify patient subtypes. No new treatments are tested; the goal is to gather knowledge to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Locations
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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