Massive castleman disease registry launches to unlock secrets of rare illness
NCT ID NCT02817997
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is a global registry for people with Castleman disease, a rare lymph node disorder. Researchers will collect medical records, lab results, and patient surveys from up to 1,000 participants to better understand symptoms, treatments, and outcomes. No experimental drug or intervention is given—the goal is simply to gather information to guide future research and care.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could help doctors better understand Castleman disease, identify patient subtypes, and improve future treatments.
- What could go wrong
- This is an observational registry, not a treatment trial. It collects data only and does not test any new therapy, so direct patient benefits are unlikely.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for ANGIOFOLLICULAR LYMPH HYPERPLASIA are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.