Massive data hunt launched to crack rare castleman disease
NCT ID NCT02817997
First seen Nov 04, 2025 · Last updated May 02, 2026 · Updated 22 times
Summary
This study is building a large international registry of people with Castleman disease, a rare immune disorder. Researchers will collect medical records and surveys from up to 1,000 patients to learn more about symptoms, lab results, treatments, and survival. No new treatments are being tested; the goal is to gather information to improve future care and research.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Pennsylvania
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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