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New registry aims to unlock secrets of rare blood disorders

NCT ID NCT03717844

First seen Nov 20, 2025 · Last updated Jun 23, 2026 · Updated 31 times

Summary

This study creates a registry for adults with plasma cell disorders, such as multiple myeloma and amyloidosis. Researchers will collect health information and optional blood samples to better understand these conditions. The goal is to gather data that could support future research and improve patient care. No new treatments are being tested.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • North Carolina Cancer Hospital

    RECRUITING

    Chapel Hill, North Carolina, 27599, United States

    Contact

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could provide valuable data to help design future studies and improve care for people with plasma cell disorders.

What could go wrong

This is an observational registry, not a treatment trial. It will not directly test or provide any new therapy, and results may take years to influence patient care.

Conditions

The condition(s) this trial relates to.

amyloidosis Castleman disease cryoglobulinemia plasma cell leukemia plasma cell myeloma POEMS syndrome Smoldering Multiple Myeloma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.