PHEOCHROMOCYTOMA

This early-stage study is testing a new type of cell therapy for people with advanced solid tumors, including melanoma, that have spread and are not responding to standard treatments. Doctors take a patient's own immune cells, modify them in a lab to better recognize and attack c…

This study is testing whether a radioactive drug called Lu-177-DOTATATE can safely help control rare adrenal and nerve-related tumors that cannot be removed by surgery. Adults with these specific tumors that show up on a special PET scan will receive four doses of the drug over s…

This study is testing a new targeted radiation drug for adults whose gastrointestinal neuroendocrine tumors (GI NET) or adrenal tumors (pheochromocytoma/paragangliomas) have spread and cannot be removed by surgery, and have already been treated with a similar type of radiation th…

This study is testing a targeted radiation treatment for children and young adults whose neuroblastoma or related tumors have not responded to standard therapies. The treatment uses a radioactive drug that seeks out and delivers radiation directly to cancer cells. Researchers aim…

This study is testing a new targeted radiation treatment for adults with advanced neuroendocrine tumors that cannot be surgically removed or have spread. The treatment uses a radioactive substance that seeks out and delivers powerful radiation directly to cancer cells while tryin…

This study is testing new types of imaging scans to better find and map rare nerve and adrenal tumors (neuroblastoma and pheochromocytoma/paraganglioma). Researchers will give participants special tracer injections and use PET or SPECT scans to see if these new methods can spot t…

This study aims to discover new genetic causes of rare tumors called pheochromocytomas and paragangliomas. Researchers will analyze DNA from up to 2,000 patients and family members to find genes linked to these tumors. The goal is to improve genetic testing and help guide screeni…

This study aims to find better ways to detect and understand rare tumors called pheochromocytomas. These tumors release chemicals that cause severe high blood pressure and can lead to dangerous complications during surgery or childbirth. Researchers will enroll up to 3,000 partic…

This study is testing a new type of PET scan to see if it can better show certain rare tumors called pheochromocytomas and paragangliomas. Up to 30 adults with these tumors will get the scan before their planned surgery or drug treatment. The goal is to learn more about the tumor…

This study aims to create a single, large registry to collect information on many different rare diseases. It will enroll about 380 patients already being treated at the Hospital Italiano de Buenos Aires who have one of the listed rare conditions. The goal is to gather data to be…