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Scientists hunt for better ways to spot hidden adrenal tumors

NCT ID NCT00004847

First seen Sep 30, 2025 · Last updated Jun 24, 2026 · Updated 32 times

Summary

This study aims to improve how doctors find and understand pheochromocytomas and paragangliomas, rare tumors that can cause dangerous high blood pressure. Researchers will use advanced imaging scans and genetic testing in up to 3,000 participants to learn more about these tumors. The goal is to develop better diagnostic methods and explore potential future treatments.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

radioactive tracers ([18F]-DOPA, [18F]-DA, [68Ga]-DOTATATE) for PET scans

What this could lead to

If successful, this research could lead to better ways to detect and understand these rare tumors, potentially improving treatment options in the future.

What could go wrong

This is an early-phase observational study focused on gathering knowledge, not testing a new treatment. It may not directly benefit participants or lead to immediate clinical changes.

Conditions

The condition(s) this trial relates to.

endocrine system disorder paraganglioma pheochromocytoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.