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Ultrasound could uncover hidden vascular risks in turner syndrome

NCT ID NCT02250456

Knowledge-focused Sponsor: University Hospital, Strasbourg, France Source: ClinicalTrials.gov ↗

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Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early This study
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 21, 2026 · Last updated Aug 21, 2026

Summary

This study is looking at whether yearly ultrasound scans can detect blood vessel abnormalities throughout the body in women with Turner syndrome, not just in the heart area. Turner syndrome is a genetic condition that increases the risk of serious vascular problems, which can shorten life expectancy. The researchers will follow women with Turner syndrome over time, using ultrasound to check for arterial, venous, and lymphatic issues, and will also look at how genetic differences might relate to these problems. The goal is to better understand the full range of vascular risks and improve prevention strategies.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Echo doppler (vascular ultrasound explorations)
What this could lead to
If successful, this could lead to better screening and prevention of serious vascular complications in Turner syndrome, potentially improving life expectancy and quality of life.
What could go wrong
This is an observational study, so it won't directly test a treatment. The findings may not lead to immediate changes in care, and the small number of participants limits how broadly the results can be applied.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

72 people

The number who actually took part.

Started

Jul 2013

Finished

Dec 2022

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

All patient with Turner Syndrome.

Ages

18 years and older

Sex

Female participants only

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Any woman over 18 years with Turner Syndrome confirmed by karyotype * Affiliated to a social security scheme * Having signed an informed consent * Having been informed of the results of the medical examination prior Exclusion Criteria: * Inability to give informed patient information related to comprehension difficulties * Topic featuring against-indications for MRI examination: * pacemaker or automatic defibrillator, implanted pump * auditory nerve stimulator, anal nerve stimulator, etc ... * the ferromagnetic objects in the soft tissues, intraocular metallic objects, cerebral vascular clips * claustrophobia * morphotype not allowing access to MRI * Patient under judicial protection, guardianship or trusteeship * Patient in exclusion period (as determined by a previous study or in progress) * Pregnancy at the time of inclusion

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Conditions

The condition(s) this trial relates to.

lymphedema peripheral vascular disease Turner syndrome vascular malformation

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Lymphedema Peripheral angiopathy Turner syndrome Vascular malformation

Contacts and locations

Locations

  • Service HTA, maladies vasculaires et pharmacologie clinique, Nouvel Hôpital Civil, Hôpitaux Universitaires

    Strasbourg, 67091, France

  • Service d'Angiologie, CHU Bocage

    Dijon, 21079, France

  • Service d'endocrinologie, Hôpital Civil, Hôpitaux Universitaires

    Strasbourg, 67091, France

  • Service d'explorations fonctionnelles non invasives cardio-vasculaires, Nouvel Hôpital Civil, Hôpitaux Universitaires

    Strasbourg, 67091, France

  • Service de Chirurgie et Médecine Vasculaire, CHU Jean Minjoz

    Besançon, 25030, France

  • Service de gynécologie, Centre Médico Chirurgical Obstétrical, Hôpitaux Universitaires

    Schiltigheim, 67303, France

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