500 patients join quest to unravel mysteries of rare scleroderma

NCT ID NCT04265144

First seen Jun 26, 2026 · Last updated Jun 26, 2026 · Updated 1 time

Summary

This study follows 500 adults with systemic sclerosis (scleroderma) for up to 5 years. Researchers will collect blood samples, and in some volunteers, skin or lung samples, to track how the disease changes over time. The goal is to better understand the natural course of this rare autoimmune disease, which could eventually guide the development of new treatments.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could provide a clearer picture of how systemic sclerosis progresses, helping researchers design better treatments in the future.

What could go wrong

This is an observational study, not a treatment trial. It will not directly test any new therapy, and results may take years to influence patient care.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

diffuse scleroderma scleroderma systemic sclerosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CHU de Bordeaux - service de rhumatologie

    RECRUITING

    Bordeaux, France

    Contact

    Contact

    Contact

    Contact

    Contact

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••