New registry aims to unlock secrets of rare paralysis disorder
NCT ID NCT06572046
First seen Mar 28, 2026 · Last updated May 16, 2026 · Updated 6 times
Summary
This study is creating a detailed registry of 500 people with hereditary spastic paraplegia (HSP), a rare disease that causes progressive leg stiffness and weakness. Researchers will collect medical history, genetic data, and patient feedback over time to better understand how the disease progresses. The goal is to improve future clinical trials and develop better treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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IRCCS Fondazione Stella Maris
RECRUITINGPisa, 56128, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
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