New registry aims to unlock secrets of rare neurological disease

NCT ID NCT06572046

Recruiting now Knowledge-focused Sponsor: IRCCS Fondazione Stella Maris Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is creating a detailed registry of 500 people with hereditary spastic paraplegia (HSP), a rare disorder that causes progressive leg stiffness and weakness. Researchers will collect medical history, genetic data, and patient feedback over time to better understand how the disease progresses. The goal is to prepare for future clinical trials and identify new genetic forms of HSP.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

hereditary spastic paraplegia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HEREDITARY SPASTIC PARAPLEGIA

Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Email: •••••@•••••

Locations

IRCCS Fondazione Stella Maris
RECRUITING

Pisa, 56128, Italy

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Email: •••••@•••••