Sarcoma Patients' voices heard: new tool to measure what really matters

NCT ID NCT04071704

Completed Knowledge-focused Sponsor: The Netherlands Cancer Institute Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This completed study with 654 sarcoma patients aims to create a better way to measure health-related quality of life. Current questionnaires miss key issues unique to sarcoma, like specific side effects and functional problems. By interviewing patients and healthcare professionals, researchers hope to develop a more sensitive tool that captures the real impact of treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could lead to a new questionnaire that better captures how sarcoma treatments affect patients' daily lives, helping doctors choose therapies that improve both survival and well-being.
What could go wrong: This is an observational study that does not test a treatment. It only aims to develop a measurement tool, so it will not directly improve health outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Personal Satisfaction sarcoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SARCOMA

Contacts and locations

Locations

Johannes Gutenberg University Mainz

Mainz, Germany
Kiing Hussein Cancer Centre

Amman, Jordan
University Hospital Carl Gustav Carus

Dresden, Germany

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