Can an online program help african american women learn their genetic cancer risk?

NCT ID NCT04407611

Completed Knowledge-focused Sponsor: Boston University Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This completed study tested whether an online self-guided program could effectively return genetic test results for hereditary breast and ovarian cancer to African American women. Over 900 women from the Black Women's Health Study were offered their results online or by printed mail, with optional genetic counselor follow-up. Researchers tracked how many chose to learn their results and measured changes in genetics knowledge, depression, anxiety, and distress over 12 months. The goal was to find scalable ways to increase access to personal genetic information in minority communities.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could show that online self-guided programs are a practical way to share genetic research results with more people, especially minority groups.
What could go wrong: This study does not test a treatment or cure. It only looks at how results are shared, not whether those results improve health. The findings may not apply to other groups or settings.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Colorectal Neoplasms, Hereditary Nonpolyposis hereditary breast ovarian cancer syndrome Lynch syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HEREDITARY BREAST AND OVARIAN CANCER LYNCH SYNDROME

Contacts and locations

Locations

BU School of Public Health, the research is being conducted remotely

Boston, Massachusetts, 02118, United States

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