Lynch syndrome patients share colonoscopy struggles in new survey

NCT ID NCT06126120

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study surveyed 231 adults with Lynch syndrome, an inherited condition that raises bowel cancer risk. Researchers wanted to find out how many people follow the UK recommendation of a colonoscopy every two years, and what makes it harder or easier to keep up with these check-ups. Participants filled out a questionnaire about their experiences and challenges. The goal was to better understand the real-world barriers to regular screening in this high-risk group.

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Conditions

The condition(s) this trial relates to.

Colorectal Neoplasms, Hereditary Nonpolyposis Lynch syndrome

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Cancer Screening and Prevention Research Group (CSPRG), Department of Surgery and Cancer, Queen Elizabeth The Queen Mother (QEQM) Building, St Mary's Hospital, Imperial College London

    London, W2 1NY, United Kingdom