Smartphone study reveals hidden toll of hereditary angioedema
NCT ID NCT07448181
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study uses smartphone surveys to track the real-life burden of hereditary angioedema (HAE) in 30 adults. Participants answer quick questions about their symptoms, mood, and daily activities every other day for 8 weeks. The goal is to capture day-to-day changes that standard questionnaires might miss, giving a clearer picture of how HAE truly affects people's lives.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could reveal a more accurate picture of how hereditary angioedema affects daily life, potentially guiding better support and care strategies.
What could go wrong
This is a small, observational study with only 30 participants, so findings may not apply to everyone. It does not test any treatment, so it cannot directly improve symptoms.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Istituti Clinici Scientifici Maugeri, Milan, Milan 20138
RECRUITINGMilan, 20138, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••