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Smartphone study reveals hidden toll of hereditary angioedema

NCT ID NCT07448181

Recruiting now Knowledge-focused Sponsor: Istituti Clinici Scientifici Maugeri SpA Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study uses smartphone surveys to track the real-life burden of hereditary angioedema (HAE) in 30 adults. Participants answer quick questions about their symptoms, mood, and daily activities every other day for 8 weeks. The goal is to capture day-to-day changes that standard questionnaires might miss, giving a clearer picture of how HAE truly affects people's lives.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could reveal a more accurate picture of how hereditary angioedema affects daily life, potentially guiding better support and care strategies.
What could go wrong
This is a small, observational study with only 30 participants, so findings may not apply to everyone. It does not test any treatment, so it cannot directly improve symptoms.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

hereditary angioedema hereditary angioedema type 1 hereditary angioedema type 2 hereditary angioedema with C1Inh deficiency

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

HEREDITARY ANGIOEDEMA - TYPE 1 HEREDITARY ANGIOEDEMA - TYPE 2 HEREDITARY ANGIOEDEMA WITH C1 ESTERASE INHIBITOR DEFICIENCY

Contacts and locations

Locations

  • Istituti Clinici Scientifici Maugeri, Milan, Milan 20138

    RECRUITING

    Milan, 20138, Italy

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