New quiz aims to boost lung disease care

NCT ID NCT07120789

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is creating and testing a questionnaire called SAVOIR to measure how much people with pulmonary arterial hypertension (PAH) understand about their condition. Up to 215 patients and expert judges will help ensure the questions are clear, relevant, and reliable. The goal is to give doctors a better tool to educate patients and improve treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this questionnaire could become a standard tool to assess and improve patient understanding of pulmonary hypertension, leading to better self-management and communication with doctors.
What could go wrong
This is an early-stage validation study, not a treatment trial. The questionnaire may not prove reliable or useful in real-world clinics, and results may not apply to all patient groups.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Instituto do Coração (InCor), Hospital das Clínicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo

    RECRUITING

    São Paulo, São Paulo, 05403-900, Brazil

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