New tool aims to gauge patient understanding of rare lung disease
NCT ID NCT07120789
First seen Nov 01, 2025 · Last updated Apr 28, 2026 · Updated 22 times
Summary
This study is creating and testing a questionnaire to see how much people with pulmonary arterial hypertension (PAH) know about their condition. Researchers will check if the questions make sense to patients and experts. Up to 200 adults with PAH will take part. The goal is to have a reliable tool that helps doctors teach patients better and improve their care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Instituto do Coração (InCor), Hospital das Clínicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo
RECRUITINGSão Paulo, São Paulo, 05403-900, Brazil
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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