Massive ATTR amyloidosis study aims to map disease journeys
NCT ID NCT06355934
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This observational study will analyze medical records from over 52,000 people with ATTR amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers want to learn about patients' symptoms, treatments, and outcomes in everyday medical practice. No new treatments are being tested; the goal is to gather information to improve understanding of the disease.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors better understand how ATTR amyloidosis progresses and how it is treated in real life, potentially improving future care.
What could go wrong
This is an observational study that does not test a new treatment, so it will not directly improve patient health. Results depend on the quality of existing medical records.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
COMPLETEDEden Prairie, Minnesota, 55344, United States
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Research Site
RECRUITINGCalgary, Alberta, T2P 4K7, Canada
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Research Site
COMPLETEDBeijing, China
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Research Site
COMPLETEDChangsha, China
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Research Site
COMPLETEDChengdu, China
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Research Site
COMPLETEDGuangzhou, China
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Research Site
COMPLETEDWuhan, China
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Research Site
COMPLETEDHorsens, Denmark
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Research Site
COMPLETEDBerlin, Germany
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Research Site
COMPLETEDTokyo, Japan
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Research Site
RECRUITINGLisbon, Portugal
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Research Site
NOT_YET_RECRUITINGPorto, Portugal
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Research Site
COMPLETEDA Coruña, Spain
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Research Site
COMPLETEDBarcelona, Spain
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Research Site
COMPLETEDBilbao, Spain
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Research Site
COMPLETEDEl Palmar, Spain
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Research Site
COMPLETEDHuelva, Spain
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Research Site
COMPLETEDLas Palmas de Gran Canaria, Spain
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Research Site
COMPLETEDMadrid, Spain
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Research Site
COMPLETEDMajadahonda, Spain
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Research Site
COMPLETEDPalma de Mallorca, Spain
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Research Site
COMPLETEDSalamanca, Spain
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Research Site
COMPLETEDValencia, Spain
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Research Site
COMPLETEDSödertälje, Sweden
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Research Site
COMPLETEDUmeå, Sweden
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Research Site
COMPLETEDLondon, United Kingdom