New italian registry aims to unlock secrets of rare heart disease
NCT ID NCT05444920
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a large database of 1,000 people with ATTR amyloidosis, a rare disease that causes abnormal protein buildup in organs. Researchers will collect health information over time to better understand how the disease progresses and to develop tools that help doctors predict outcomes. No new treatments are being tested; the goal is to improve knowledge and care for patients across Italy.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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'Azienda Ospedale. Università di Padova
NOT_YET_RECRUITINGPadova, Italy
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AOU Ospedali Riuniti
NOT_YET_RECRUITINGAncona, Italy
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AOU San Luigi Gonzaga
NOT_YET_RECRUITINGOrbassano, TO, Italy
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ASST Ovest Milanese - Ospedale di Legnano
NOT_YET_RECRUITINGLegnano, MI, Italy
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ASST Papa Giovanni XXIII
NOT_YET_RECRUITINGBergamo, Italy
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ASST Spedali Civili di Brescia
NOT_YET_RECRUITINGBrescia, Italy
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Asst Santi Paolo E Carlo
NOT_YET_RECRUITINGMilan, Italy
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Azienda Ospedaliera Sant'Andrea
NOT_YET_RECRUITINGRoma, Italy
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Azienda Ospedaliera di Cosenza
NOT_YET_RECRUITINGCosenza, Italy
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Azienda Ospedaliera di Perugia
NOT_YET_RECRUITINGPerugia, Italy
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Azienda Ospedaliero Universitaria Senese
NOT_YET_RECRUITINGSiena, Italy
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Azienda Ospedaliero Universitaria di Sassari
NOT_YET_RECRUITINGSassari, Italy
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Azienda Ulss 8 Berica
NOT_YET_RECRUITINGVicenza, Italy
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Ematologia ASL Roma 1
NOT_YET_RECRUITINGRoma, Italy
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Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
NOT_YET_RECRUITINGMilan, Italy
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Fondazione IRCCS Policlinico San Matteo
RECRUITINGPavia, 27100, Italy
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Fondazione Policlinico Universitario Agostino Gemelli CARDIOLOGIA
NOT_YET_RECRUITINGRoma, Italy
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IRCCS Istituto Clinico Humanitas
NOT_YET_RECRUITINGMilan, Italy
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IRCCS San Gerardo Monza
NOT_YET_RECRUITINGMonza, Italy
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Istituto Auxologico Italiano
NOT_YET_RECRUITINGMilan, Italy
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Istituto Monzino
NOT_YET_RECRUITINGMilan, Italy
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Osp. Sant'Andrea
NOT_YET_RECRUITINGVercelli, Italy
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Ospedale Civile ASL Pescara
NOT_YET_RECRUITINGPescara, Italy
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Ospedale Oncologico "Armando Businco"
NOT_YET_RECRUITINGCagliari, Italy
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Ospedale San Giovanni Bosco
NOT_YET_RECRUITINGTorino, Italy
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Plesso Ospedaliero "Andrea Tortora" di Pagani
NOT_YET_RECRUITINGSalerno, Italy
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Policlinico Universitario Agostino Gemelli NEUROLOGIA
NOT_YET_RECRUITINGRoma, Italy
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Policlinico di Bari
NOT_YET_RECRUITINGBari, Italy
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Presidio ospedaliero di Ivrea
NOT_YET_RECRUITINGIvrea, Italy
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l'Ospedale di Treviglio-Caravaggio
NOT_YET_RECRUITINGTreviglio, Italy
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- Nationwide registry aims to crack the code of a rare protein-clogging disease
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