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Nationwide registry aims to crack the code of a rare protein-clogging disease

NCT ID NCT07689331

Recruiting now Knowledge-focused Sponsor: Semmelweis University Source: ClinicalTrials.gov ↗

First seen Jul 08, 2026 · Last updated Jul 09, 2026 · Updated 1 time

Summary

This study is a national registry in Hungary that collects medical information from people diagnosed with systemic amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers will look at patient records to understand how the disease starts, how it is diagnosed, and how it progresses over time. The goal is to gather real-world data that could help improve future diagnosis and care for people with this condition.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
This registry could help doctors spot systemic amyloidosis earlier and improve care by revealing patterns in symptoms, diagnosis, and organ involvement.
What could go wrong
This is an observational registry, not a treatment trial. It collects existing data and cannot directly test new therapies or change outcomes for participants.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

AL amyloidosis Amyloid Neuropathies, Familial hereditary amyloidosis Immunoglobulin Light-chain Amyloidosis primary systemic amyloidosis restrictive cardiomyopathy wild type ATTR amyloidosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AL AMYLOIDOSIS AMYLOID CARDIOMYOPATHY ATTR AMYLOIDOSIS SYSTEMIC AMYLOIDOSIS

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Balatonfüredi Állami Szívkórház

    RECRUITING

    Balatonfüred, 8230, Hungary

  • Budapesti Péterfy Sándor utcai Kórház - Rendelőintézet

    RECRUITING

    Budapest, 1076, Hungary

  • Budapesti Szent Margit Kórház

    RECRUITING

    Budapest, 1032, Hungary

  • Clinical Centre, University of Debrecen

    RECRUITING

    Debrecen, 4032, Hungary

  • Department of Internal Medicine and Hematology, Semmelweis University

    RECRUITING

    Budapest, 1088, Hungary

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Dél-budai Centrumkórház Szent Imre Egyetemi Oktatókórház

    RECRUITING

    Budapest, 1115, Hungary

  • Dél-pesti Centrumkórház - Országos Hematológiai és Infektológiai Intézet

    RECRUITING

    Budapest, 1097, Hungary

  • Fejér Vármegyei Szent György Egyetemi Oktató Kórház

    RECRUITING

    Székesfehérvár, 8000, Hungary

  • Gottsegen National Cardiovascular Center

    RECRUITING

    Budapest, 1096, Hungary

  • Pécsi Tudományegyetem

    RECRUITING

    Pécs, 7623, Hungary

  • Szegedi Tudományegyetem

    RECRUITING

    Szeged, 6725, Hungary

  • Észak-Pesti Centrumkórház - Honvédkórház

    RECRUITING

    Budapest, 1134, Hungary

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