ATTR AMYLOIDOSIS

This study tests whether a special PET scan using a radioactive tracer called [18F]Florbetaben can accurately diagnose cardiac AL amyloidosis, a rare condition where abnormal proteins build up in the heart. About 200 adults with suspected cardiac amyloidosis will receive one inje…

This study is following 1,500 people with ATTR amyloidosis, a rare disease that damages the heart and nerves, to better understand how the condition progresses and how it is managed in everyday medical practice. Researchers will also track the safety and effectiveness of two appr…

This study will follow over 52,000 people with ATTR amyloidosis, a rare disease where abnormal protein builds up in organs. Researchers will look at medical records to see how the disease is diagnosed, what treatments people receive, and how their health changes over time. The go…

This study is creating a large online registry of 1,000 people with ATTR amyloidosis, a rare disease where abnormal proteins build up in organs. Researchers will collect information from diagnosis through follow-up to learn how the disease progresses in real life. The goal is to …