10-Year study aims to unlock mysteries of NF1
NCT ID NCT00924196
First seen Dec 02, 2025 · Last updated May 06, 2026 · Updated 17 times
Summary
This study follows 259 children and adults with Neurofibromatosis Type 1 (NF1) for up to 10 years to learn how the disease changes over time. Researchers use imaging, blood tests, and quality-of-life surveys to track tumors and other symptoms. The goal is to better understand NF1 and help design future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
Conditions
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