NEUROFIBROMA
Clinical trials for NEUROFIBROMA explained in plain language.
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Could a cold sore virus shrink NF1 skin tumors?
Disease control Recruiting nowThis early study tests whether a drug called IMLYGIC, made from a modified herpes virus, can be safely injected into painful or disfiguring skin tumors in adults with NF1. Ten participants will receive up to 8 injections over 4 months. The goal is to see if the treatment is toler…
Matched conditions: NEUROFIBROMA
Phase: PHASE1 • Sponsor: Johns Hopkins University • Aim: Disease control
Last updated Jun 27, 2026 12:31 UTC
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New questionnaires could help NF1 patients voice appearance concerns
Knowledge-focused Recruiting nowThis study is developing questionnaires to measure how visible tumors in neurofibromatosis type 1 (NF1) affect patients' appearance concerns. About 110 participants, including children, adults, and caregivers, will complete surveys and join focus groups or interviews to give feed…
Matched conditions: NEUROFIBROMA
Sponsor: National Cancer Institute (NCI) • Aim: Knowledge-focused
Last updated Jun 27, 2026 12:25 UTC