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Scientists track hearing loss in kids to unlock future treatments

NCT ID NCT05402813

Recruiting now Knowledge-focused Sponsor: Sensorion Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 180 children up to age 16 who have hearing loss caused by mutations in the GJB2 or OTOF genes. Researchers will regularly measure their hearing using standard tests and questionnaires to see how it changes over time. The goal is to better understand the natural course of these conditions, which could help in planning future clinical trials for new therapies.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this study will provide crucial data on how genetic hearing loss progresses in children, which could help design future treatments.

What could go wrong

This is an observational study, not testing any treatment. It may not lead directly to new therapies, and results depend on consistent follow-up over time.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

autosomal recessive nonsyndromic hearing loss 1A autosomal recessive nonsyndromic hearing loss 9 Hearing Loss, Sensorineural nonsyndromic genetic hearing loss sensorineural hearing loss disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AUNB1 CONGENITAL DEAFNESS DFNB1A DFNB9 GJB2 GENE MUTATION OTOF GENE MUTATION SENSORINEURAL HEARING LOSS, BILATERAL

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Necker Hospital

    RECRUITING

    Paris, France