Scientists track rare liver diseases in kids to unlock clues
NCT ID NCT01148550
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows up to 90 children and young adults with mitochondrial liver diseases to learn how these conditions progress over time. Researchers will collect medical data and samples to better understand the diseases and find markers that predict outcomes. The goal is to improve care and guide future treatments.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could improve understanding of mitochondrial liver diseases and help identify biomarkers to predict disease progression.
- What could go wrong
- This is an observational study, not a treatment trial, so it offers no direct benefit to participants. It is currently suspended, which may delay results.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Ann & Robert H. Lurie Children's Hospital
Chicago, Illinois, 60611, United States
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Children's Healthcare of Atlanta - Emory University
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital Los Angeles
Los Angeles, California, 90027, United States
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Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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Johns Hopkins School of Medicine
Baltimore, Maryland, 21287, United States
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Mount Sinai Medical Center
New York, New York, 10029, United States
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Riley Hospital for Children
Indianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Texas Children's Hospital (Baylor College of Medicine)
Houston, Texas, 77030, United States
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The Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224, United States
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University of California at San Francisco (UCSF)
San Francisco, California, 94143, United States
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University of Utah
Salt Lake City, Utah, 84113, United States
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Washington University School of Medicine
St Louis, Missouri, 63110, United States
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Other studies related to the condition(s) this trial covers.
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