Scientists track rare liver diseases in kids to unlock clues
NCT ID NCT01148550
First seen Oct 31, 2025 · Last updated May 08, 2026 · Updated 24 times
Summary
This study follows children and young adults with rare mitochondrial liver diseases to learn how these conditions progress over time. Researchers collect medical data and samples like blood and tissue to build a biobank for future studies. The goal is to better understand the diseases, improve diagnosis, and predict outcomes. No new treatments are tested; this is an observational study.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Ann & Robert H. Lurie Children's Hospital
Chicago, Illinois, 60611, United States
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Children's Healthcare of Atlanta - Emory University
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital Los Angeles
Los Angeles, California, 90027, United States
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Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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Johns Hopkins School of Medicine
Baltimore, Maryland, 21287, United States
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Mount Sinai Medical Center
New York, New York, 10029, United States
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Riley Hospital for Children
Indianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Texas Children's Hospital (Baylor College of Medicine)
Houston, Texas, 77030, United States
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The Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224, United States
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University of California at San Francisco (UCSF)
San Francisco, California, 94143, United States
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University of Utah
Salt Lake City, Utah, 84113, United States
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Washington University School of Medicine
St Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.