New hope for kids with rare liver disease: drug may delay transplant
NCT ID NCT05426733
First seen Nov 01, 2025 · Last updated May 09, 2026 · Updated 30 times
Summary
This study tests the long-term safety and effectiveness of odevixibat in children with biliary atresia, a rare liver disease. The main goal is to see if the drug helps children stay alive without needing a liver transplant. About 180 children who completed a previous study will take odevixibat and be monitored for liver health and side effects.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for BILIARY ATRESIA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
ASST Papa Giovanni XXIII
Bergamo, Italy
-
Akdeniz University Medical Faculty
Antalya, Turkey (Türkiye)
-
Azienda Ospedaliera di Padova
Padova, Italy
-
Bicêtre Hospital
Le Kremlin-Bicêtre, France
-
Boston Children's Hospital
Boston, Massachusetts, 02115, United States
-
CHU Sainte-Justine
Montreal, Canada
-
Charité - Universitätsmedizin Berlin
Berlin, Germany
-
Children's Healhcare of Atlanta- Emory University school of medicine
Atlanta, Georgia, 30322, United States
-
Children's Hospital Colorado
Aurora, Colorado, 80045, United States
-
Children's Hospital of Fudan University
Shanghai, China
-
Children's Mercy Hospital and Clinics
Kansas City, Missouri, 64108, United States
-
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
-
Columbia University Medical Center New York Presbyterian Morgan Stanley-Komansky Childrens Hospital
New York, New York, 10032, United States
-
Guangzhou Women And Childrens Medical Center
Guangdong, China
-
Hacettepe İhsan Doğramacı Children's Hospital
Ankara, Turkey (Türkiye)
-
Hassenfeld Children's Hospital at NYU Langone
New York, New York, 10016, United States
-
Hospital Raja Perempuan Zainab II
Kota Bharu, Malaysia
-
Hospital Universitari Vall d'Hebron
Barcelona, Spain
-
Indiana University school of Medicine
Indianapolis, Indiana, 46202, United States
-
Instytut Pomnik-Centrum Zdrowia Dziecka
Warsaw, Poland
-
Istanbul University Istanbul Medical Faculty Hospital
Istanbul, Turkey (Türkiye)
-
Royal Children's Hospital
Parkville, 3052, Australia
-
Seattle Children's Hospital
Seattle, Washington, 98105, United States
-
Seoul National University Childrens Hospital
Seoul, South Korea
-
Starship Child Health, Te Whatu Ora - Health New Zealand
Auckland, 1023, New Zealand
-
The Childrens Hospital at Montefiore Albert Einstein School of Medicine
The Bronx, New York, 10467, United States
-
The Hospital for Sick Children
Toronto, Canada
-
University Children´s Hospital Tuebingen
Tübingen, Germany
-
University Malaya Medical Centre
Kuala Lumpur, 59100, Malaysia
-
University Medical Center Groningen
Groningen, Netherlands
Conditions
Explore the condition pages connected to this study.