Researchers dig into records to improve care for rare liver disease in kids
NCT ID NCT06184971
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study reviewed medical records of 320 children with biliary atresia, a rare liver disease, treated at hospitals in the northeastern U.S. between 2012 and 2021. The goal was to find which factors lead to better outcomes, such as avoiding liver transplant or clearing jaundice. By analyzing past cases, researchers hope to guide future care and improve survival for these children.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this research could help doctors understand which treatments work best for children with biliary atresia, potentially leading to better care guidelines.
What could go wrong
This is a retrospective chart review, not a treatment trial. It cannot prove what works best, only suggest patterns. The findings may not apply to all patients.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Albany Medical Center/Bernard & Millie Duke's Children's Hospital
Albany, New York, 12208, United States
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Baystate
Springfield, Massachusetts, 01199, United States
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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Connecticut Children's Medical Center
Hartford, Connecticut, 06106, United States
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Dartmouth-Hitchcock Medical Center
Lebanon, New Hampshire, 03756, United States
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Eastern Maine Medical Center
Bangor, Maine, 04401, United States
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John R. Oishei Children's Hospital
Buffalo, New York, 14203, United States
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Maine Medical Center
Portland, Maine, 04102, United States
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Massachusetts General Hospital for Children
Boston, Massachusetts, 02114, United States
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Rhode Island Hospital/Hasbro Children's Hospital
Providence, Rhode Island, 02905, United States
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SUNY Upstate Medical University
Syracuse, New York, 13210, United States
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UMass Memorial Medical Center
Worcester, Massachusetts, 01605, United States
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University of Rochester Medical Center/Golisano Children's Hospital
Rochester, New York, 14642, United States
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Yale University
New Haven, Connecticut, 06510, United States