Researchers dig into records to improve care for rare liver disease in kids

NCT ID NCT06184971

Completed Knowledge-focused Sponsor: Yale University Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study reviewed medical records of 320 children with biliary atresia, a rare liver disease, treated at hospitals in the northeastern U.S. between 2012 and 2021. The goal was to find which factors lead to better outcomes, such as avoiding liver transplant or clearing jaundice. By analyzing past cases, researchers hope to guide future care and improve survival for these children.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this research could help doctors understand which treatments work best for children with biliary atresia, potentially leading to better care guidelines.
What could go wrong: This is a retrospective chart review, not a treatment trial. It cannot prove what works best, only suggest patterns. The findings may not apply to all patients.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

biliary atresia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BILIARY ATRESIA

Contacts and locations

Locations

Albany Medical Center/Bernard & Millie Duke's Children's Hospital

Albany, New York, 12208, United States
Baystate

Springfield, Massachusetts, 01199, United States
Boston Children's Hospital

Boston, Massachusetts, 02115, United States
Connecticut Children's Medical Center

Hartford, Connecticut, 06106, United States
Dartmouth-Hitchcock Medical Center

Lebanon, New Hampshire, 03756, United States
Eastern Maine Medical Center

Bangor, Maine, 04401, United States
John R. Oishei Children's Hospital

Buffalo, New York, 14203, United States
Maine Medical Center

Portland, Maine, 04102, United States
Massachusetts General Hospital for Children

Boston, Massachusetts, 02114, United States
Rhode Island Hospital/Hasbro Children's Hospital

Providence, Rhode Island, 02905, United States
SUNY Upstate Medical University

Syracuse, New York, 13210, United States
UMass Memorial Medical Center

Worcester, Massachusetts, 01605, United States
University of Rochester Medical Center/Golisano Children's Hospital

Rochester, New York, 14642, United States
Yale University

New Haven, Connecticut, 06510, United States

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