Major study on rare childhood liver diseases halted
NCT ID NCT00571272
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study followed children and young adults with genetic liver diseases that cause bile buildup. The goal was to track how these diseases progress over time, including the need for liver transplants or other complications. No treatments were tested; the aim was simply to learn more about these rare conditions.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611, United States
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Baylor School of Medicine
Houston, Texas, 77030, United States
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Children's Healthcare of Atlanta - Emory University
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital of Los Angeles
Los Angeles, California, 90027, United States
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Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Cincinnati's Children's Memorial Hospital
Cincinnati, Ohio, 60190, United States
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Johns Hopkins University Hospital
Baltimore, Maryland, 21287, United States
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Mount Sinai School of Medicine
New York, New York, 10029, United States
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Riley Hospital for Children
Indianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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St. Louis University - Cardinal Glennon Children's Medical Center
St Louis, Missouri, 63104, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224, United States
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University of California at San Francisco (UCSF)
San Francisco, California, 94143, United States
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University of Utah
Salt Lake City, Utah, 84113, United States
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Washington University School of Medicine/St. Louis Children's Hospital
St Louis, Missouri, 63110, United States