ALAGILLE SYNDROME
Clinical trials for ALAGILLE SYNDROME explained in plain language.
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Can a daily pill help kids with rare liver disease avoid transplant?
Disease control Recruiting nowThis study follows 30 people with Alagille syndrome who are taking odevixibat (Bylvay) in their daily lives. The goal is to see if the drug helps them avoid serious surgeries like liver transplant or bile duct repair over the long term. Researchers will also track weight, height,…
Matched conditions: ALAGILLE SYNDROME
Sponsor: Ipsen • Aim: Disease control
Last updated Aug 05, 2026 00:00 UTC
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New study tracks Real-World safety of odevixibat in rare liver disease
Disease control Recruiting nowThis study will follow 30 people with Alagille syndrome who are taking odevixibat in their daily lives. The goal is to see how safe the drug is over the long term by tracking any side effects. It is not testing if the drug works, but rather monitoring its real-world safety.
Matched conditions: ALAGILLE SYNDROME
Sponsor: Ipsen • Aim: Disease control
Last updated Aug 05, 2026 00:00 UTC
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New drug livmarli tracked for Long-Term safety in kids with rare liver disorders
Disease control Recruiting nowThis study follows 230 children with Alagille syndrome or progressive familial intrahepatic cholestasis (PFIC) who are taking Livmarli, a drug to reduce bile buildup and itching. Researchers will monitor side effects, liver function, and long-term outcomes like need for transplan…
Matched conditions: ALAGILLE SYNDROME
Phase: PHASE4 • Sponsor: Mirum Pharmaceuticals, Inc. • Aim: Disease control
Last updated Jun 27, 2026 14:02 UTC