New study tracks Livmarli's Long-Term effects in rare liver disease
NCT ID NCT07290257
First seen Jan 11, 2026 · Last updated May 15, 2026 · Updated 19 times
Summary
This study looks at the long-term safety and effectiveness of the drug Livmarli in people with Alagille syndrome, a rare genetic liver condition. About 100 patients who are already prescribed Livmarli will be followed to monitor side effects, liver function, and key health outcomes like the need for a liver transplant. The goal is to better understand how the drug works over time in everyday care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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AO Ospedale PAPA GIOVANNI XXIII
RECRUITINGBergamo, Lombardy, 24126, Italy
Contact Email: •••••@•••••
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Bicetre University Hospital
RECRUITINGLe Kremlin-Bicêtre, Île-de-France Region, 94270, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Toulouse - Hôpital des Enfants
RECRUITINGToulouse, Occitanie, 31049, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Charite Berlin
NOT_YET_RECRUITINGBerlin, 13353, Germany
Contact Email: •••••@•••••
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Children's University Hospital Essen
NOT_YET_RECRUITINGEssen, 45149, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Cliniques Universitaires Saint Luc (UCLouvain)
NOT_YET_RECRUITINGBrussels, 1200, Belgium
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospices Civils de Lyon - Hopital Femme Mère Enfant
RECRUITINGBron, Auvergne-Rhône-Alpes, 69500, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hospital Universitairo Vall D'Hebron
RECRUITINGBarcelona, Catalonia, 08035, Spain
Contact Email: •••••@•••••
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Hospital Universitario La Paz
RECRUITINGMadrid, 28046, Spain
Contact Email: •••••@•••••
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Istituto mediterraneo trapianti - ISMETT
NOT_YET_RECRUITINGPalermo, Sicily, 90127, Italy
Contact Email: •••••@•••••
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University Hospital Gent (UZ Gent)
NOT_YET_RECRUITINGGhent, 9000, Belgium
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Hamburg-Eppendorf
NOT_YET_RECRUITINGHamburg, 20246, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Medical Center Groningen (UMCG)
NOT_YET_RECRUITINGGroningen, 9713GZ, Netherlands
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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