Survey reveals Pandemic's toll on sickle cell patients
NCT ID NCT04417673
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study surveyed 186 adults with sickle cell disease in the U.S. to learn how the COVID-19 pandemic impacted their stress, anxiety, pain, and healthcare use. Participants completed online questionnaires about their medical history, mental health, and experiences during the pandemic. The goal was to gather information to better support this community in future health crises.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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National Human Genome Research Institute (NHGRI)
Bethesda, Maryland, 20892, United States
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