What makes people join a genetic counseling study? researchers want to find out
NCT ID NCT05126810
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study asks 500 people with Li-Fraumeni syndrome (or their parents) to fill out a questionnaire about why they would or would not join a future trial comparing standard genetic counseling to a personalized version. The goal is to understand what factors influence their decision, which could help make future studies more appealing and inclusive.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could help researchers design better genetic counseling studies that more people are willing to join.
- What could go wrong
- This is an early-stage study that only measures willingness to participate, not the actual effectiveness of counseling. Results may not apply to all populations.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
M D Anderson Cancer Center
RECRUITINGHouston, Texas, 77030, United States
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