Building a database to unlock the secrets of a rare cancer syndrome
NCT ID NCT04982744
Summary
This study is creating a detailed registry to collect health information from people with Li-Fraumeni syndrome, a rare condition that increases cancer risk. By gathering data on genetics, medical history, treatments, and quality of life from up to 200 participants, researchers aim to better understand how the disease develops and varies between people. The goal is to use this knowledge to improve future care and management for individuals and families affected by the syndrome.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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IRCCS Istituto Ortopedico Rizzoli
ENROLLING_BY_INVITATIONBologna, Emilia-Romagna, 40136, Italy
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.